Cystic Fibrosis is the most frequent genetic disease in children.
It affects not only your pancreas but also
your lungs, sinuses, intestines
and possible your liver and you could get diabetes.
Also your skin is very salty (makes great reindeer lick) , you can
get lung infections and sometimes tummy troubles or you can't smell from polyps in your nose or eat because you feel sick.
Some of us have a few enemy's (bacteria) in our lungs with strange names is "pseudomonas"
or "cepacia" even shorties as "e-coli"
or a long one like "aspergillus".
We all have to take a lot of pills like enzymes and acid blockers
for our tummy and ADEK vitamins and some of us use a lot more pills than that.
Most of us have a nebuliser , I like to
call it my "peace pipe" , a nebuliser is used to spray a fine mist of antibiotics
in our lungs to kill our enemy's (bacteria), but their army is strong and smart ,
so our nebuliser doesn't always help and sometimes they cause an infection.
Then we have to go to the hospital
to get a tune - up and we get IV therapy and after 3 or 4 weeks we feel usually much better.
Also we can get out of breath easely and some of us use oxygen and we run
slower than other kids.
In hospital we often we have to do a FEV
test this is a big machine with a hose and mouthpiece that we have to blow in, i always try to blow up the machine but it never works , the
machine always wins.
The nice nurse always helps me to do the best I can and I cant do more than that.